Doing The Math

Itā€™s supposed to be spring soon–supposed to–but Iā€™m still sitting in front of the heater in my robot hoodie and wool knee socks, sipping tea and listening to the southerly howl and screech outside. Tui courtship season, ostensibly; I feel sorry for those poor noisy birds huddled up under the whipping branches. This morning when I finally got into work after a five minute walk to the bus stop I had to wring the rain out of my skirt.

My pernicious, continuously chosen location in springtime, on the opposite side of the planet to the Place when my mother lives means I canā€™t ever talk to her in the mornings, her time, when sheā€™s feeling really strong. I canā€™t get up early enough to call her before my hourā€™s commute to work, and I canā€™t stay up late enough either to get her at a time that makes more sense to her. Sheā€™s always a bit tired when I call. Sheā€™s often very confused; she knows who I am and can usually follow the conversation, but she has a hard time with some of the details. My sister says that she is a lot better in the morningsā€”and Mom agreesā€”but I just canā€™t stay awake long enough.

Saturday morning, my time, is when I skype her. About six weeks ago I called the head nurse at the Place and let her know in my best social worker voice that The Wellbeing Of This Resident Requires An Integrated Care Approach So Please Have Someone Go To Her Apartment At The Appointed Time And Turn On My Motherā€™s Laptop, Thanks Ever So Much. It worked for a couple weeks but lately Iā€™ve had to call the Place and remind them. I can hear them rolling their eyes, every week, all the way in the other hemisphere. They (usually, eventually) come and help her but Mom gets so anxious. She apologizes to me for not knowing how to use the computer anymore. Over the weekend, when Iā€™d had to call her on the landline because the assistant hadnā€™t arrived yet, she said my sister was going to help her get set up. ā€œBeck is here,ā€ she said. ā€œSheā€™ll know what to do.ā€

ā€œIs she in the house with you, Mom?ā€ I know, by now, to cover my bases.

ā€œOh. No. Not in the house, no.ā€

We get on fine, though, during these talks. When I call her during the week Iā€™m always at work in an unused office, one eye on the clock, but during our weekend video chats Iā€™m usually still in my pajamas and sometimes drinking a cup of tea. This past Saturday I entertained her by making my bedhead as fuzzy as I could get it. We talk about whatā€™s outside our respective windows: parking lot and live oaks (hers) or washing line and bellbirds (mine). We talk about her day, if she can remember it, or about what I have planned for the weekend. Sheā€™s always really excited if I have a gig, as I did the other day, or if Iā€™m going to a party or something. I ask about the cats a lot, about what sheā€™s reading.

I donā€™t lie to her about my life, or hersā€”from the beginning, weā€™ve all made it a point to say CANCER and not talk around itā€”but I try to keep everything on a pretty positive note. She needs, apparently, to use a walker now, and so I tell her that itā€™s a way for her to keep active without worrying about her balance. She says that she wants more services, and I remind her of how much she likes her yoga teacher and tell her that weā€”and of course by ā€˜weā€™ I mean my sisterā€”are doing everything we can to get her more help. I donā€™t know if she agrees with me about any of this. Itā€™s hard to tell.

I try not to do it too often, but every now and again I canā€™t help offering to go home. To stay home, with her. I have talked to my sister, I have done the math, so many times, and every time it doesnā€™t make sense, for me to go, for me to stay. I go over and over it again but there is never any middle ground between my staying here, in my beloved community, a minimum thirty-six hours away, and my being there, with nothing and no one else. No income, no friends, no health insurance, no band, no dating. If I go there, if I stay there, then I do full time care for her and thatā€™s it, that’s my life, for who knows how many years. If I stay here, if I stay here, then I am the furthest away from her I can possibly be and I can never call except when sheā€™s tired.
The decisions have been decidedā€”for now, at least, because three weeks ago she was sounding super strong and clear, two weeks ago there was no walkerā€”but I canā€™t help asking her, sometimes, again, if she wants me to come home.

She always says no. She always snaps to the kind of lucidity I rarely hear from her, anymore, and that I can barely recall used to be her normal way of speaking. ā€œOh, no, honey, I donā€™t think weā€™re ready for that. Thereā€™s no reason to do that now.ā€ She never misses a word or leaves gaps in the sentence; itā€™s immediate and clear, unlike most of our conversations. She always says she doesnā€™t want me to lose my life; she has said it many times. Itā€™s always a relief, though, every time, because that math, that other side of the equation, is almost impossible for me to contemplate. But there is a part of meā€”a very childish part, a part that still wants my mom to tell me what to do–that wishes she would say yes: come home, stay home. I hate making this choice. I hate making it over and over again.

She doesnā€™t, though. I donā€™t think she ever will. If I have to go back, if it comes to that, it wonā€™t be her asking. Meanwhile, I do the math every day. I lose more sleep and still never manage to call at the right time.


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9 responses to “Doing The Math”

  1. gingerest Avatar
    gingerest

    Oh, dear sweet girl, I am so, so sorry about all of this, not least the math. Love to you.

  2. Marah Avatar
    Marah

    I love you. And your Mommy.

  3. Abi Avatar
    Abi

    Lots of love, Chiara. Lots of love to you and your mom and sister.

  4. Tracy Avatar

    Oh Chiara. So much love to you and yours, girl. I just… I don’t even know, but my heart breaks for alla youse all the same. LOVE.

  5. Kizz Avatar

    There’s a thing, this age old saying thing, that I think I first heard on an episode of Dawson’s Creek of all places. It says that “love is a choice you make every day.” Since it was on DC and since I’m hopelessly romantic and all I always thought of it as a romantic love they’re talking about there. But the more I live, the more choices that get made, the more I realize it’s all kinds of love. And the choices are rarely easy.

    LOVE.

  6. Renee Avatar
    Renee

    That really sucks. Instead of staying up late or getting up early for the day, could you go to sleep and have an alarm set and wake to call her in te middle of the night? Or would you not be able to get back to sleep after that?

    We did a lot of that math in the last year of Scott’s Mother’s life. We flew down a lot (with only a 2.5 hour flight how could we not?) but in the week between when she accidentally overdosed on her insulin and they had to induce a coma and put her on a respirator (which she never came off of) Scott’s dad was still saying we didn’t need to come down yet (we already had tickets to come down a few weeks later.). I know Scott wishes we had gone down sooner but I couldn’t force the issue with him. I think he was in as much denial as his parents at that point.

    I guess what I’m trying to say is when they go, they go fast. At some point you have to put down the calculator.

    Love,
    Renee

  7. Shannon Avatar
    Shannon

    Oh Chiara, it’s so hard. I always felt guilty when I had to leave my mom, and also felt relief at the same time. To be away is a blessing and a curse. It’s horrible to see someone you love suffering, but it’s horrible to miss that time, too. I’m so sorry. I will keep you in prayer.

  8. Nomie Avatar
    Nomie

    It’s a terrible choice, and a heart-tearing calculus. Sending you love. <3

  9. Theresa Avatar

    Just get it all out, and write it all out, as much and as often as you need to.

    Your friends are there to support you!

    xoxoxo